Caregiver Support for Dementia

Dementia is a broad term to describe a group of signs and symptoms seen in a variety of diseases affecting the brain, such as Alzheimer’s Disease. Dementia affects less than three per cent of all British Columbians. It isn’t considered a normal part of aging, but the risk of developing dementia increases with age; those 85 years and over are affected the most.

Anyone caring for someone with dementia understands the physical and emotional toll. Caring for a family member or friend with Alzheimer’s disease or a related dementia can be challenging, exhausting and, at times, overwhelming. Feelings of frustration, sadness and anger are normal and valid emotional responses when caring for someone affected by dementia. I have yet to meet a family caregiver who didn’t think they could be doing a better job or more.

At a recent health care professional event, conversations highlighted the importance of distinguishing between what is and what is not within a caregiver’s power to change. Frustration and anger often arise from attempting to change an uncontrollable condition. Caring for someone with dementia is synonymous with uncontrollable situations and behaviour. Normal and often simple daily activities such as getting dressed, bathing and eating can often become very frustrating, both for the caregiver and the individual with dementia. Other behaviours common to dementia, such as wandering, repetitious movement, shadowing or asking questions repeatedly, can also be challenging for caregivers. Changing the behaviour of a person suffering from dementia is not possible. In most cases, the behaviour is due to the disease, not your loved one pushing your buttons.

There are many experts in the province who can support family caregivers and the person affected by dementia. Connecting with the Alzheimer’s Society of BC and your family doctor are a good first step to help get referred into the right resource, such as First Link and geriatric speciality services. A new educational resource will soon be available for family caregivers supporting loved ones with dementia. Watch for more details through Vancouver Island Health Authority.

Many caregivers often find themselves feeling isolated as the time and logistical demands of the disease can make it difficult to stay in touch with friends and family. For some caregivers, a support group can be very beneficial. Many participants use these groups to exchange information, gain support and friendship with others whose lives are affected by dementia. Support groups also provide a forum for sharing practical tips and strategies for coping with the many challenges of caregiving.

Even if a support group isn’t for you, we encourage caregivers to stay socially connected. It’s easy to forget to prioritize ourselves when the demands of caring take over. Having a positive support network is key in supporting (and reminding) caregivers of the importance of self-care.

Other forms of help include one-to-one support, reading books/articles or professional assistance. Reach out to us at Family Caregiver of BC and we will provide you with resources and strategies, and make sure you are supported in your crucial role.

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Wendy Johnstone

Wendy Johnstone is a Gerontologist and a consultant with Family Caregivers of British Columbia in Victoria, BC.